Category Archives: MS News

Evil, evil, PT

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Okay… so no hip replacement here (not yet anyway… :P) I just loved this comic strip… pinterest is great to find all kinds of stuff… the one thing hip replacements and I have in common would have to be Physical Therapy…

With MS, my pain comes and goes, and jumps around… the one constant is the back pain… there is always some back pain for me… soooo, for the second time, I am off to PT… things seem to be going better this time around, but then, that may have something to do with the fact that the guy in charge of my PT sessions is related to my Neruo-PA (she is the one I see for all my MS-doctor visits, and has been there for the most of my disease, no matter what other doctors were in charge of my diagnose) Sarah Ervin rocks… but anywho… this guy can talk directly to my PA and know more about me than all the other doctors I have seen, because, although there is central online information, most doctors never talk face to face

I have always wanted to force my doctors to have a conference call, a sit down, or even a dang email chain… just communicate so that everyone knows what is going on, and I (the patient) am not forced to defend your medical and drug choices to all the other physicians in my rolodex… grr…

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But back to PT time… some is easy, some evil and painful, and man can you be sore the next day from the smallest movements… the first day of PT had me moaning and soaking in the tub for hours… but the second wasn’t nearly as bad… the PT session will last a few weeks, not sure how long (as long as insurance pays up) and depending on the stretches and movements my PT-dude puts me through, I will be facing some pain and soreness… but hopefully I will feel a little better by the time it is over….

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But some of the moves  can make you feel down right silly… lol… pretzels must be extremely limber… 😛 wish me luck… I am off to another session later today… I hope to get some more sleep in before then, but who knows… I am exhausted, but my sleep has a mind of its own… happy wordage, Tracey Clark

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MS News

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Exactly… lol… let’s just say that it is a good thing that i write while in a comfortable position…

I love my words, and I love the worlds and characters that I am able to create, buuuutttt…. the dang edits knock me on my arse… about an hour, that’s all I get… then my eyes get heavy, my eyes start to cross, and between one breath and the next I am out like a light… I wake up a few hours later (lucky if my laptop hasn’t crashed to the floor) and go back to my edits… Writing saved my life, and helped me to cope with all the losses when I was first diagnosed… there was a lot that i couldn’t do for years… but luckily, i had my stories… at first i couldn’t write or type… but I could imagine and dream up stories to tell myself… It took about five years before I could finish writing a sentence without passing out, and or crying with a headache… It has taken a lot of time, but for now, I can write and come up with story after story… now if I could only pass off the edits to someone else… lol…

no one seems to get it… the phrase ‘just lay down when you get tired’ is hurtful and completely missing the point… the point being that I don’t have time to slid into bed, I don’t have time to put my computer in a safe place, and I definitely don’t have time uncross my eyes… 😛 my brain looks at those continuous edits and says ‘nope, no more, I’m leaving’

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When I do catch on quick enough to the fact that my brain has had enough (and I’m not just bored to death with edit), I can try to change tracks… stop editing and move on to one of my craft projects… It isn’t that I hate edits, it is the process of cognitive input… for some reason, I can make up stories and write blogs until the cows come home, but ask me to research or fill out a questionnaire… that’s when my brain starts to get cross… hmph…

As for going off to bed for a catnap??? Who wants to be in bed all the time? If I stopped everything to take a nap every time there was even a hint of exhaustion, I would be in bed 70% of the time… booo… I already feel like I missed ten years of my life while I was dealing with my disease… I was hit hard when I was diagnosed… one moment I was a 25 year old college student and the next I was in a hospital bed, acting like a five year old… Why I got better, I don’t know… I just know that Multiple Sclerosis can throw a person into blindness, but that days or months, or even years, your sight can come back… which to me means that we should never give up hope…

getting sick sucks, but life changes on a dime, figure out what you want to do, and then go day by day figuring out what you can do… if you can’t drive to the store today, order a pizza and drive to the store tomorrow… When i am really down, I have my mother for support… somehow, she manages to pull me out of my MS blues when something I want to do is suddenly impossible… I hope that every one out there (MS or not) has someone in their life that can be there for time half as much as my Mother is for me…

Happy wordage everyone… I hope you enjoy the second friday of the month/MS news post… Tracey Clark