Tag Archives: donations

Walk it Off – MS

Today is Walk MS in my area… a time for MS supporter and sufferers to come together to fight MS with a fundraiser Walk… they walk a mile, eat some lunch, and purchase some Multiple Sclerosis shirts…

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lol… my zombie walk has gotten a lot better but I still have my off days… most of those walking are sturdy on their feet… to participate, you don’t have to actually walk, if you can’t… I have been virtually walking for the last month… (though no one has chosen to donate on my MS page… I was still able to show my support)

next year, plan how you can support MS… donations, walk/bike, or blog until you can’t blog no more… šŸ˜›

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I have never had anyone say this to me… and I never say it to myself… be sure that you never say it either (to yourself or to others) … each and every day, do what you can… whether it is for something like Walk MS or in day to day tasks… I can’t walk this year, and I have found a way to make myself feel like I am contributing… I would love to actually walk but that just isn’t some that I CAN do…

and the walker are off….

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE

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whistle while you work

MS month is almost at a close…

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lol… I love this… MS cuteness…

Multiple Sclerosis does make us Clumsy, Sleepy, Achy, Shaky, Forgetful, Grouchy, and Dopey… but that is not all we are…

my brain may be full of holes, but it still works (mostly… lol) and I am still able to dream and come up with new worlds for my novels… and that’s the point… emotions and outward appearances aside, we all have dreams… and if you are willing to work to find a way to achieve your dreams, there is still hope… life is just different for us…

when I work on my novels, I am always reclined in a soft motorized bed or a recliner… I am not bent over a desk… I wouldn’t last out an hour if I tried to sit and work at a desk, no matter how comfortable the desk chair…

the few times I have the energy to cook (I love cooking) I move slower, and mom bought some cushions for me to stand on while at the stove…

when I work on typing, writing long hand, painting, or one of the other various crafts I enjoy, I have a brace that refuses to allow my wrist to move… my joints hurt like I have carpal tunnel if I use too many repetitive movements… but with the brace, I can last as long as I want… (at least until my brain gets tired and hits the off switch)

What are your dreams, what do you want to do but have given up on because of MS… if you can’t see a way around the problem, reach out to they folks at the national Multiple Sclerosis Society HERE … if they don’t already know the answer, I’m sure they will work with you to find one… and remind all your friends and family that this is MS Month… lets raise money to find a cure… and support each other however we can…

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE

 

Fire Ant Attack

Wow… this month has been overwhelmingly full of MS posts… šŸ˜› usually I only post about 4-7 posts on this site, but the local MS Walk is taking place on April 10th, and March is MS month… since I don’t feel up to walking with my fellow MS/supporter peeps, this has been my way of virtually walking… and getting out the links for those that wish to donate… but donation can be so much more than money… understanding and support is just as important, at least in my opinion… if you can do either, I (as a Multiple Sclerosis sufferer) thank you…

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when I saw this picture on pinterest, I immediately thought of MS and the horrible leg pain I used to go through before my favorite PA at my neurologist came up with mixture of meds to help…

every minute of every day, 24/7, I could feel these angry Fire Ants attacking my legs… and every few seconds those invisible ants would send out an electrical shock, a stabbing pain… it was unbearable… until my PA came along, I was depressed and unsure if I could make it year in and year out with the pain…

not to mention the lack of sleep… there is no way to close your eyes and rest when you are being attacked by fire and electricity… even my penchant hot baths to relieve pain wouldĀ only help so much… it took forever (if it worked at all) for my legs to stop hurting, and as soon as I got out of the tub, the ants cameĀ back…

imagine that pain you get after one of your limbs (legs or arms) falls asleep and then you move around and the blood rushes back in where the circulation was cut off… that is nothing compared to the Fire Ant pain… it is not only an attack on the body, but after months of living with something thatĀ refuses toĀ go away, it becomes an attack onĀ your mental health… there is not point to continue,Ā not when you feel like noĀ oneĀ will ever help you… that no one believes you… after all, it’s all in your head, right???

well, it may be all in your head, but there is a way to help… Gabapentin – miracle drug, along with a muscle relaxant, and those deadly ants only visit when I forget to take my medicineĀ on time…

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE