Tag Archives: emotions

Fear Me…

Okay… I came across this poster on Pinterest just had to share… it is essential to know and accept that MS patients deal with fear and anxiety on a daily basis…

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I already do “Sharing Fear” and “Coping with Anxiety List”… except for writing down my anxiety, but I may subconsciously give the characters in my novels and short stories some of my anxieties and fears…

I have noticed that one of my sub-characters has a problem with hot weather, and a main character has shyness and wallflower behavior to rival my own… lol… but with my stories I can find ways for them to move past these issues…

with sharing my fears, voicing them out loud, I feel a weight disappearing… just by saying it out loud I realize that my fears aren’t as impossible as I thought… they aren’t as big and all consuming as they appeared… and usually, I have my mother to tell me that everything will be okay… and even if she doesn’t have an answer that will actually fix my fears, she has a suggestion that cheers me up…

as for the coping with anxiety list, I already said that I don’t do a regular list of fear/anxiety and that I share my fears when the hit… as for the rest of the list…

My mother is always there for a quick hug when I need one, and I am all about relaxing bath time… in fact I spend more time in the tub than I do out… at least that is how it feels… when I can’t sleep or my anxiety is getting the better of me, or even if I have some pain that refuses to go away, I head for the bathroom and shout out ‘I’m going swimming’… some hot water and low lights, and I am off to sleepy time…

A calming breath is always helpful, and diverting activities are at the top of my list of coping mechanisms… usually I use one of my favorite movies/shows to zone out… my mind already knows all my favorite parts of the show and tunes itself to the familiar scenes and actions… working on an art project also helps to balance out my mind… and man do I love art projects… especial if it is something new that I have never tried before…

and finally, Avoidance… I know what will cause me to be angry, anxious, sad, etc… and avoiding news, shows, people, events, and all the other disruptive activities that I know will affect my mental state is part of life now that I have MS… I don’t usual say why I am avoiding something, and that is wrong… I should just come out and tell those around me that I need to disengage from the situation so that my mental state isn’t adversely affected… I mean, if you know that going to a party with ‘uncle Dick’ or ‘friendly Ratchet’ will cause your temper to flare or your tears to flow, then walk away… when I can walk away, I avoid the situation like the plague…

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE

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Whose your Baby Girl??

Okay… I have written about Shemar Moore before, but come on… I love this guy… and after the teaser of his death on Criminal Minds, I just have to post about his MS work again…

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The support of family and friends is paramount when dealing with Multiple Sclerosis, or any life altering disease… I know I wouldn’t have made it this far without my mother to count on… it is good to see that an actor of Shemar’s talent takes the time to support his mother…

he has his Baby Girl line of clothes and what-not, and I read how he road in one of the Bike MS events… very cool…

Check out his line  HERE and you get to help with MS and get something cool to wear in the process… I already have my shirt… part of the proceeds will go to help find a cure for MS… see… very cool…

My personal battle has been ups and downs of doubt, depression, fear, and questioning… oh, I have hope, excitement, and goals… but I have been able to fight the former with my mother’s shoulder and strength, and the latter has been due to her helping hand… she is the one that tells me to keep trying and to never lose hope, and anytime she can help me reach or experience my dreams, she rushes forward to make it happen…

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE

whistle while you work

MS month is almost at a close…

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lol… I love this… MS cuteness…

Multiple Sclerosis does make us Clumsy, Sleepy, Achy, Shaky, Forgetful, Grouchy, and Dopey… but that is not all we are…

my brain may be full of holes, but it still works (mostly… lol) and I am still able to dream and come up with new worlds for my novels… and that’s the point… emotions and outward appearances aside, we all have dreams… and if you are willing to work to find a way to achieve your dreams, there is still hope… life is just different for us…

when I work on my novels, I am always reclined in a soft motorized bed or a recliner… I am not bent over a desk… I wouldn’t last out an hour if I tried to sit and work at a desk, no matter how comfortable the desk chair…

the few times I have the energy to cook (I love cooking) I move slower, and mom bought some cushions for me to stand on while at the stove…

when I work on typing, writing long hand, painting, or one of the other various crafts I enjoy, I have a brace that refuses to allow my wrist to move… my joints hurt like I have carpal tunnel if I use too many repetitive movements… but with the brace, I can last as long as I want… (at least until my brain gets tired and hits the off switch)

What are your dreams, what do you want to do but have given up on because of MS… if you can’t see a way around the problem, reach out to they folks at the national Multiple Sclerosis Society HERE … if they don’t already know the answer, I’m sure they will work with you to find one… and remind all your friends and family that this is MS Month… lets raise money to find a cure… and support each other however we can…

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE

 

Stress equals Mess

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Being in a stressful situation isn’t always avoidable… life loves to throw us into insane moments, to hit us out of the blue with worry, sadness, anxiousness, fear… STRESS … lol…

Especially those of us with MS… but why is Multiple Sclerosis the favorite target of the big bad bully Stress??? Because sometimes we react in ways that make no sense… not even to us… and then the Norms (hehehe… that’s everyone without MS) reacts normally to our out of control emotions and actions, and then??? welllllll, it all goes down hill from there…

I avoid situations that I already know will be stressful (if I can) because I know that it will throw my emotions into chaos… and no one, not even me, wants to deal with a grown woman crying and sweating because the heat has turned her legs to jelly, or the sight of a guest at a party has her spitting mad, or the downtown restaurant is serving all her favorite foods (foods not on her diet) anddddddd cue the melt down… lol…

I know that feeling denied, different, or ignored will nudge the emotions and meltdowns, and stress, anddddd finally the exacerbation (jackhammer to the brain as lesions act up)… I want to live as long as I can, with as many happy days as possible… I know that I can’t control everything, but if I see that I am heading into a stressful situation, I stop and decide if I can avoid it… and nine times out of ten, I can…

I may hurt some feelings, but I am more worried about me… I explain to those I can, but if I know the situation will be a trial, I do my best to head for the hills…

Happy wordage, tracey…

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE