Tag Archives: headache

OMG … my head

head

lol… I know what my brain is telling me… it is screaming that I have MS and need to slow down… the month of may has been way to full of activity… I know that I need to avoid stress and heat, and listen to my body… but sometimes all I hear is ‘blah, blah, blah…’

I hate the feeling of being hampered by my MS, but that is the way of it… grrr…

okay, now that the growling is out of the way, I have to think of ways to work with my MS… my hardest obstical is Sleep… I toss and turn, sleep in the tub, and wake up exhausted… when I sleep in the bed, I roll in circles and end up tossing my pillows all over the place.. sometimes my head ends up where my feet should be… and falling asleep in the first place is a real back in the arse…

but my heads main problem is Smell… I took mom to get a perm earlier this month, and ended up sitting outside to avoid the smells… man… it had to be the strongest solution ever created for a perm… and then we rested up for a mother/daughter church dinner with granny-2…  I guess my brain/smeller was already in hyper-drive… as soon as we walked into the reception/fellowship area my nose was assaulted by the smell of freshly cut onions… my eyes began to water and my head to ache… omg… and the dang onions were at the other end of the room…

sooo… I had a few headaches this month, but I got a lot done… finished camp nano with 70,000+ words (one and half novels in rough draft form), worked on a new art project, and checked out Lake Cumberland with mom… a little pain, but all in all, I have had some great moments this month…

happy wordage, tracey

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Stress equals Mess

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Being in a stressful situation isn’t always avoidable… life loves to throw us into insane moments, to hit us out of the blue with worry, sadness, anxiousness, fear… STRESS … lol…

Especially those of us with MS… but why is Multiple Sclerosis the favorite target of the big bad bully Stress??? Because sometimes we react in ways that make no sense… not even to us… and then the Norms (hehehe… that’s everyone without MS) reacts normally to our out of control emotions and actions, and then??? welllllll, it all goes down hill from there…

I avoid situations that I already know will be stressful (if I can) because I know that it will throw my emotions into chaos… and no one, not even me, wants to deal with a grown woman crying and sweating because the heat has turned her legs to jelly, or the sight of a guest at a party has her spitting mad, or the downtown restaurant is serving all her favorite foods (foods not on her diet) anddddddd cue the melt down… lol…

I know that feeling denied, different, or ignored will nudge the emotions and meltdowns, and stress, anddddd finally the exacerbation (jackhammer to the brain as lesions act up)… I want to live as long as I can, with as many happy days as possible… I know that I can’t control everything, but if I see that I am heading into a stressful situation, I stop and decide if I can avoid it… and nine times out of ten, I can…

I may hurt some feelings, but I am more worried about me… I explain to those I can, but if I know the situation will be a trial, I do my best to head for the hills…

Happy wordage, tracey…

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someone remove the anvil

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living with MS is like having a road crew constantly doing jack-hammer like projects inside your brain… I has been a little over a year since my last jack hammer episode, aka exacerbation… or… lesion lighting up my brain like the fourth of july…

but it isn’t a pain you forget… and unlike headaches that I had experienced before, these were easy to pinpoint… I could hold my hand over the area of my brain that was being attacked… and even worse… I could feel when my brain was swelling due to all that trauma… I remember telling my doctor that my brain felt too big for my head, and he said “that’s because it is…”

As for the aspirin comment??? yeah… I learned that lesson real fast… I learned to listen to my body… and when I had an MS headache the only thing that would work was a vasodilator… a pill that scared the crap out of my mom… and one that my doctor no longer prescribes…  I hope someone prescribes them if my headaches come back, but not having even one hidden in the couch cushions, in the medicine cabinet, dropped under the bed, etc, etc, etc…. that is scary… but I would rather cut off my let with a dull knife than go back to the pain doctor that I had to see when everyone in Ky started freaking out about prescribing pain pills… but that is a story from another time… suffice it to say, the woman make me cry and I feared she would make my MS worse with all the stress, so now I spend a lot of time in the bath when in pain…

my Neuro-PA also figured out something to fight the pain in legs, so for now, I sleep in the tub when I have to… 😛

but the worst question to get “did you take something??” would just hurt my feelings… it wasn’t a stupid question exactly… it is normal to ask a person in pain if they have taken something, but if you have had MS for any length of time, you know… there are certain pains in your body that will not react to pain pill… and will the number of other meds being forced on us, it is never smart to add something that will do absolutely nothing…

now back pain??? when that happens, I would love to have some extra strong aspirin … but again… bath time… (Get the picture??) no I’m not in my nineties… those wrinkles are just prune-y skin from spending 8+ hours in the water… you may tell me that hot water is bad for my MS, but it has been ten years and I am doing better than anyone dreamed…

so if anyone needs me, I will be in the bath… 😛 happy wordage, tracey

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE