Tag Archives: inspiration

Hello bladder issues…

Well, another day in the life of MS…. now my bladder has decided to become a silent assassin… yep… that is what I have… the organ is killing me, and doing it by sneaking up on me (usually when I first wake up, but hey, all hours of the day are fair game) and leaking by either dribbles or gallons…

and being me, I decided to tell anyone and everyone… why??? because it is embarrassing as all get out… and I have found that repeatedly sharing your horror & embarrassment helps to lessen that feeling, and the need to hide…

and it turns out, a lot of women pee on themselves… lol… so far, no men have stepped up and said “hey… I always have to worry about bathroom access…”

at my writer’s meeting the other day, we do updates on or progress, creativity, and whatnot… and one of my fellow writers also has MS… she is writing about her life with MS… so of course, her share time reminded me that ‘hey… I had some great fodder for her book’… after I blurted out that my latest MS-kick-in-the-pants (wet pants) was bladder weakness, she said “I’m the exact opposite… I feel like I am about to pee on myself, and then sit there for hours, not able to go…”

so I replied “I would be happy to trade you…” lol…

then at my cousin’s birthday get together (yep, I did say I shared my embarrassment anywhere and everywhere) I told some of our mutual friends about my leaky pipes, and one woman started nodding “I would work all day, with a bathroom right there, and never have to go… then on the way home it would hit me… some days I couldn’t even make it into the house… just stood in the driveway peeing all over myself…” she said…

I replied “sometimes I’m just like…” and here I looked down into my lap “well that just happened…”

and it is sooo true… my bladder has decided to stop alerting me to impending disaster… and if I forget to go to the restroom that one extra time (even if I went thirty minutes prior) I always wake up in trouble… one wrong move, one cough (oh don’t get me started on coughing and bladder issues) and flood gates open…

lol… later guys… I think I will run to the bathroom now… Tracey

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The new me…

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this is sooooo very true… no matter how upbeat I try to be, I still have moments of regret and mourning… I miss the girl that could do anything, that could and would jump first and ask questions later, that knew no fear and would try just because she was told it was impossible… I miss the way she saw the world, the way she yearned to climb higher and swim deeper…

although I know that that girl is still inside me, urging me to find a way, I now have to temper her where I used to let her run free… now we are forced to work with and around restrictions…

RESTRICTIONS… one of the ugliest words in the English language… while I have found ways to work on my art and my writing, it is the outside world that still needs a work-around or two… I know this post seems relatively down for me, but I blame the heat… it is as the temperature continues to cook my spinal cords and brain cells that I am forced to admit that MS is hard to accepts, to live with…

so now that I have vented, I plan to look for more ways to let the girl from Yesterday come out to play a little more… not really sure what that means, but surely there is a way…

she and I have been working on keychains for the RRBC Block party… there are still a few days left to win some prizes… in fact, my book site Finder’s Keepers Series will be one of the blogs on the 29th… with the winner picking between my bracelets, earrings, and the new keychains as their prize…

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but that is all indoors fun… my lost half is itching to do something outdoors… maybe someday I will figure out a way to let her come out to play

Warm and Worn

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I don’t know about you guys, but I am soooooo ready for fall… I swear that the oxygen is beginning to evaporate because of this outrageous heat… omg…

I had to run out to the post office to mail out a prize for the RRBC Block Party and the heat was out of control… the car temp (which I truly hope was broken – on my 2016 car… almost a year old… ??? that’s long enough for things to start breaking… right???) well it told me that it was 101 degrees out… which is just wrong on soooooo many levels… but the prize wasn’t gonna mail itself… there was nothing to do but to drip my way to the counter… (omg – the sweat)

hopefully it will cool down out there by the time I’m forced to make that trip again… the heat has been zapping my energy and will to ??? well, to do anything ready… the amount of movement it takes to get out of bed already has me broken out in salty, dripping sweat… it is impossible to think straight when you are constantly cursing the salty tears burning your eyes…

but sopping wet and blood shot eyes, I managed to get my winner’s package sent… lol… which reminds me, if you guys want to win some goodies, the RRBC Back to School Block Party… every day this month there are chances to win prizes on the awesome blogs signed up to participate… bloggers, authors, and all manner of fun peeps… in fact, I did a stop on my author blog – Finder’s Keepers – Author Tracey Clark– on aug 5th, and will be doing another stop on aug 29th over on my book blog – Finders Keepers Series… woo who… come have some fun… and remember to head to RRBC to check the line up each day for new chances…

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Evil Confusion… Evil MS

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I want to growl, maybe even howl… there is definitely a scream or two building up at the inefficiency of my mind… okay… that might be a little harsh… but still very true…

I love writing… which is very surprising seeing as I deal with MS (confusion) and dyslexia every day, and especially during the hotter summer months… as the temperature rises, my MS symptoms make themselves known… misunderstandings and an inability to verbalize my thoughts is frequent… but after growing up with the confusion and the lack of articulation associated with dyslexia, these symptoms are nothing new…

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part of creating novels and short stories is research… something that I have always abhorred… but the added difficulties of living with MS has made evil research even worse… it’s hard to explain, but my brain sort of shuts down when faced with too much confusion… learning something new, or focusing on and answering questions creates a short circuit in my ability to stay awake… I simply pass out… it is maddening… and disheartening…

I want to create stories that can be enjoyed… stories with added tidbits of honest real world information to pull the reader in and allow them to visualize my words as if they were living the story…

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finding a balance that allows my mind to work at its own pace, and my creative side to put together works I consider worthy of publishing is hard… but in the end it is worth it… there is a pride and joy that overcomes me as my words become published works… it is a type of high, a high of accomplishment… (oh course, then I have to deal with writer’s depression… something that happens after the publishing phase is over and down with… but I deal with that by taking on art projects and starting on new writing projects… )

if the confusion of MS symptoms and dyslexia were too overwhelming (or not worth enduring) I never would have finished my first novel… now if I could just find a way to stay conscious during research, life would be a lot easier to navigate…

good luck with life, and good luck with you own MS symptoms during this overwhelmingly hot season… happy wordage, tracey

sign up for Finder’s Keepers Newsletter and receive updates on future works… 😛

Walk it Off – MS

Today is Walk MS in my area… a time for MS supporter and sufferers to come together to fight MS with a fundraiser Walk… they walk a mile, eat some lunch, and purchase some Multiple Sclerosis shirts…

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lol… my zombie walk has gotten a lot better but I still have my off days… most of those walking are sturdy on their feet… to participate, you don’t have to actually walk, if you can’t… I have been virtually walking for the last month… (though no one has chosen to donate on my MS page… I was still able to show my support)

next year, plan how you can support MS… donations, walk/bike, or blog until you can’t blog no more… 😛

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I have never had anyone say this to me… and I never say it to myself… be sure that you never say it either (to yourself or to others) … each and every day, do what you can… whether it is for something like Walk MS or in day to day tasks… I can’t walk this year, and I have found a way to make myself feel like I am contributing… I would love to actually walk but that just isn’t some that I CAN do…

and the walker are off….

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE

Animal House…

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puppies are sooooo dang cute… and I have to say I have never seen a cat be that tolerant… for the most part my two pugs and one kitty love each other… but they also stay out of each others way… (like I said… for the most part… lol) the pugs give Ellie her way, and she keeps her claws to herself…

but what in the world does this have to do with Multiple Sclerosis???

they are my motivation to get up in the mornings… to keep going when I just want to crawl under the covers and forget for a while… even your doctor will tell you that a pet can help with various health issues… lower your blood pressure, keep you calm, stabilize anxiety… and that is your average pet, not an animal trained to help with blindness, seizures, or various traumas…

my animals get me out of bed, make me smile and brighten my day… they need me and I need them…

I love my mother and she is my number one support, but my animals give me that spark for life when things look bleak… personally, I think that everyone should have a pet… no matter if you have an illness or not… and especially as we get older… I have seen more than one of my grandparents light up after getting an animal of their very own.. even the ones that swore that they never wanted another…

so if you don’t have a pet, and want to save money… go to your local shelter and see which one speaks to you… or if you want one of the breeds, save up and get you fur-baby as soon as possible… they are a lot of work, but worth every minute…

living with MS has been a lot easier with my fur-babies by my side…

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE

mommy killer!!!

 

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alrighty… before I get to my MS virtual Walk post, I had to share this… this was one of the many reason that I have come to believe that Disney is a mother-hater… lol… I cried more watching their movies as a child than in day to day life… they were always killing mom or locking her up… I would cry and tell mom that they needed their mommy… but his part really hit me hard for some reason… dumbo could only touch his mommy in this small way… even now, it tears me up… (I blame the MS) damn you Disney… now I need tissues…

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I am gonna pretend that I didn’t just tear up over a Disney GIF… muahahaha

Battling MS truly is a super power… and don’t forget it… even Dr. Seuss knows that MS can suck…but each and every day, we face MS and come out on top…we get back up, we smile through the pain, we clear our throats and give that sentence another try… and when we just need to take a day off, it doesn’t mean the MS has won… no way, dude… we just need a moment to get our second/third/forth wind…

facing each day with a positive outlook isn’t always possible, but as long as you give it a try, you have tomorrow to give it another go… that’s what I try to remember, when I am feeling beaten… ‘I wasn’t able to do it today, but tomorrow I can try again’…

and if you want to donate to Walk MS, Click HERE

or if you just want to check out my Walk MS post, Click HERE